My baby brother is 9 years younger than me, we were always very close and I love him very much. He and his beautiful wife have an amazing 7 year old who is my princess. 17 days ago, they brought another little princess into this world. This was to be a wonderful day that so many of us looked forward to, Karley Marie was born, beautiful and loved!
(ignore the date, my camera is set wrong)
Soon after she was born, she started turning blue. The doctors said she had some fluid on her lungs due to being born via c-section and she would be just fine.
The next thing we knew, they were gearing up to fly her to Kosair Children’s Hospital in Louisville, Ky. They had done a chest x-ray and found out that she actually had been born with Congenital Diaphragmatic Hernia (CDH). This is a very dangerous condition in which there is a hole in the diaphragm, allowing intestines and sometimes other abdominal organs to herniate into the chest cavity. This can take up room meant for the lungs and cause them to not develop properly, sometimes not at all. We were told she only had a 50/50 chance of survival. Of course, I start researching this and found out that some babies with very little functioning lung tissue survive, while others with no lung damage at all do not and there’s no real way of knowing which babies will pull through and which will not. It was a feeling that I, as wordy as I am, can’t find the words to describe.
Karley underwent surgery at just 2 days old. The doctor’s said it could take up to 4 hours to perform, they were done in 45 minutes! We were told that this had to have happened very late in the pregnancy, there was very little damage to her lung and only needed stitches to repair the hole in her diaphragm, instead of a mesh that is sometimes used. She is a fighter! She recovered and healed very quickly. As of now, the doctor’s don’t expect any long-term issues associated with this. What a little miracle! I say she just needed to make a grand entrance, a little diva just like her big sister!
Karley is home with her family now and doing great! She was in Kosair for 13 days, it could have been much worse and I’m so thankful things have turned out the way they have!
While she was in the hospital, my brother and his wife stayed in the Ronald McDonald house. I don’t know if any of you have ever needed this, or has known anyone who has, but this is a wonderful charity and I am now a big supporter! The doctor’s and nurse’s that took care of Karley, along with the wonderful people at the Ronald McDonald house are true blessings to so many scared families. I feel like I owe them all a huge amount that I could never repay! Thanks to them, God, and a very determined and tough little girl, I now have the pleasure of enjoying my nieces for a very long time!
If you would like to learn more about the hospital or the Ronald McDonald House Charities, please check out the links below. They are truly wonderful!
Ronald McDonald House Charities
Kosair Children’s Hospital